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Advances in Patient Reported Outcomes Research Conference

For full conference details please visit:

Thursday 8th June 2017 at St Anne’s College, Oxford

Following the success of last year’s inaugural conference at Sheffield, the second annual UK & Ireland PROMs Conference was held at St Anne’s College, Oxford on 8th June 2017. This one-day conference included a mixture of plenary sessions, oral presentations and posters by PROMs researchers from across the UK and Ireland. This unique event brought together leading experts and early career researchers to engage with the latest advances in the field of PROMs research and implementation.

Presentation Downloads

Session 1a. Development and validation of measures - 1

Validation of the Long-Term Conditions Questionnaire (LTCQ) in a diverse sample of health and social care users in England
Caroline Potter (University of Oxford)

Developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D
John Brazier (University of Sheffield)

Cat-PROM5: A brief self-report questionnaire instrument for cataract surgery
John Sparrow (University of Bristol/ Bristol Eye Hospital)

Constructing and Validating the Short Recovering Quality of Life (ReQoL) Measure for Use in a Mental Health Population
Anju Keetharuth (University of Sheffield)

Session 1b. Qualitative evidence

Development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study
Pushpendra Goswami (University of Hertfordshire

“Normal is redefined”: reflections on outcomes for women with breast cancer: an ethnographic study in London
Helen Ward (Imperial College London)

Examining the relevance of PROMs to patients: A review of qualitative data capturing which HRQoL domains are important to patients
Elizabeth Lumley (University of Sheffield)

Perspectives of patients and professionals on the use of patient-reported outcome measures in primary care: a systematic review of qualitative studies
Ian Porter (University of Exeter)

Session 1c. PROMs for specific patient groups

Subjective Quality of Life (QOL) accounts. Essential for applied health research into long term conditions (LTC's)
Deb Roberts (Royal Liverpool & Broadgreen University Hospitals Trust)

Effects of Out-of-Pocket (OOP) Payments and Financial Distress on Quality of Life (QoL) of People with Parkinson's (PwP) and their Carers
Anil Gumber (Sheffield Hallam University)

The impact of comorbidities on outcomes of hip and knee replacement: a meta-analysis
Belene Podmore (London School of Hygiene and Tropical Medicine)

Extending the use of PROM scores in the Hip and Knee Replacement Patient Pathway in the NHS: Enhancing response rates through patient engagement
William Jackson (University of Oxford)

Session 2a. PROMs into practice

The Musculoskeletal Health Questionnaire (MSK-HQ): a partnership model of implementation to assess acceptability, feasibility and impact
Elizabeth Gibbons (University of Oxford)

When, how and why does PROMs feedback improve clinician-patient communication within the consultation? A realist synthesis
Joanne Greenhalgh (University of Leeds)

Converging and diverging views about PROMs: A qualitative study involving patients and clinicians
Carol Fawkes (Barts and The London Queen Mary's School of Medicine and Dentistry)

ACHE - The Arthroplasty Candidacy Help Engine: Using PROMs data to identify thresholds for referral in hip and knee replacement surgery
Helen Dakin (University of Oxford)

Session 2b. Development and validation of measures – 2

Collaborating with burn patients and their families to develop the CARe Burn Scales: a portfolio of burn-specific quality of life PROMs for use in paediatric and adult burn care
Catrin Griffiths (University of the West of England)

Testing the face validity and acceptability of the Primary Care Outcomes Questionnaires through cognitive interviews
Mairead Murphy (University of Bristol)

Validation and refinement of the HASMID questionnaire: A measure of health and self-management in diabetes
Jill Carlton (University of Sheffield)

Developing a Renal Stone Patient Reported Outcome Measure: stage 1, 2 & 3
Mostafa Ragab (Hinchinbrookes Hospital)
Session not presented

Session 2c. Analytic issues

What exactly is a good outcome for total knee replacement (TKR)? And what proportion of patients experience one?
Anqi Gao (University of Oxford)

Symptom clusters for revising scale membership in the analysis of Patient Reported Outcome Measures
Agnieszka Lemanska (University of Surrey)

Mapping between PROMS, and the Relative Responsiveness of PROMS: a meta-analytic approach
AE Ades (University of Bristol)

To impute or not to impute? A comparison of statistical approaches for analysing missing longitudinal patient reported outcome data in randomised controlled trials
Ines Rombach (University of Oxford)

Session 3a. Electronic delivery and CAT

Patients, staff and relatives agree: electronic PROM reporting of adverse events is a feasible and acceptable adjunct to standard care in pelvic radiotherapy for cancer: eRAPID (Electronic patient sel
Patricia (Trish) Holch (Leeds Beckett University)

The eSMART RCT: Comparing electronic Symtpom Management using the Advanced Symptom Management System (ASyMS) with standard care for patients during adjuvant chemotherapy
Teresa Young (East & North Herts NHS Trust)

Quality of life assessment is more efficient precise when conducted using a computer adaptive testing protocol: an international study
Chris Gibbons (University of Cambridge)
Currently unable to share slides

The PROMIS Profile 29 allows valid comparisons of patient-reported health over France, Germany and the UK
Chris Gibbons (University of Cambridge)
Currently unable to share slides

Session 3b. Concepts and models

The Development and Use of Conceptual Models
Sarah Shingler (DRG Abacus)

Chronobiology and PROMs: A systematic scoping review for patients with chronic health conditions
Antoinette Davey (University of Exeter Medical School)

Diversity in values across the life-course
Joanna Coast (University of Bristol)

Understanding DEMQOL scores: Minimal Important Differences
Sarah Smith (London School of Hygiene & Tropical Medicine)

Session 3c. Preference – based measures

Use of PROs in children: development of a value set for the EQ-5D-Y
Koonal Shah (Office of Health Economics)

Selection of bolt-ons after factor analysis: are linear regression models a useful technique?
Aureliano Paolo Finch (University of Sheffield)

New methods for analysing the distribution of EQ-5D observations
Bernarda Zamora (Office of Health Economics)

Putting the P back into PROMs: using patient valuations of EQ-5D health states to improve hospital performance comparisons
Thomas Patton (Centre for Health Economics)

Plenary Presentations

Using Patient Reported Outcome Measures (PROMs) in cancer care
Professor Galina Velikova

The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK
Professor Jose M Valderas

If you have any queries please contact us via the event hotline on 01332 224503

For full conference details please visit:


Thursday 8th June 2017

More details coming soon.


Speakers and Facilitators


Professor Galina Velikova

Keynote Speaker
Prof Velikova leads the quality of life sub-studies of large national and international research trials in breast cancer. She is involved in the implementation in NHS, locally of holistic needs assessment for cancer patients (NICE supportive & palliative care guidelines) and nationally contributes to the National Cancer Survivorship Initiative.

She is the past chair the British Psychosocial Oncology Society (BPOS) and the European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group. She is president elect of the International Society for Quality of Life Research.

She is a Consultant in Medical Oncology and a Professor at the University of Leeds. Her clinical work focuses on systemic treatment of breast cancer patients with early and advanced disease.


Professor Jose-Maria Valderas

Keynote Speaker
Title: The National Institutes of Health: Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK

Jose-Maria is an Academic General Practitioner, with a commitment to research on patient centred care that is relevant for decision making in clinical practice and health policy. He leads the Health Services & Policy Research Group at the University of Exeter Medical School and on the patient-centred care theme of the Exeter Collaboration for Academic Primary Care (APEx).

His current research interests focus on the use of patient reports on their own health for decision making in clinical practice and health policy, and the improvement of processes of care (quality and safety), with a particular interest in patients with multiple conditions.

He is Lead for Advanced Health Services Methods in the MSc on Applied Health services Research at the University of Exeter. Since completing his training as a General Practitioner he has maintained an active clinical practice in different countries and in a variety of environments, including developing countries for very brief periods.

Jose-Maria is President Elect of the International Society for Quality of Life Research and Associate Editor of the European Journal of General Practice.


St Anne’s College, Oxford

Woodstock Road, Oxford, OX2 6HS •  Directions

Additional Information

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PDFIPRO course- Introduction to Patient-reported Outcomes