Families and care providers continue to face the challenges of providing every day care to the highest possible standard whilst keeping up to date with ever increasing knowledge and research developments. The future looks brighter for generations to come, but today’s patients and carers still have to deal with daily realities.
This event will attempt to give a balanced and realistic account of what is on the horizon for our children without overlooking the struggles of our patients as they continue with their journey. As it has always been emphasised in our previous events, there is no better alternative to patients, clinicians and scientists working together as one team, if we are to deliver best care and achieve disease modification.
A host of eminent speakers have already confirmed their willingness to contribute, these include;
Poster submissions for presentation at the Conference are invited from delegates who wish to showcase research that they have recently undertaken. There will be a dedicated session for poster viewing at the conference. Deadline for submissions 23:59 Monday 29th May 2017. please download the Submission Form, complete and return to firstname.lastname@example.org using the subject ‘HD Conference 2017 Submission’
Following the success of our previous HD Conferences we are pleased to be able to offer interested sponsors a selection of packages. Please contact us if you would be interested in having a presence at the conference. A limited number of sponsors / exhibitors will be considered and applications will be processed subject to availability, please find a sponsorship & Exhibition information document available to download at the bottom of this page.
Download the full agenda below to see full details including all workshop options
|09:00||Registration, exhibition and networking|
|09:30||Introduction: Dr George El-Nimr, Consultant Neuropsychiatrist, North Staffordshire|
|09:35||North Staffordshire Combined Healthcare Trust; Trust Welcome|
|09:40||HD for me and my family: A family member|
|10:05||Becoming extra-ordinary, the journey through Huntingtonland: Alice Rivières, French writer and co-founder of Dingdingdong|
|10:30||Two bodies, One common goal Dina de Sousa, Board Member of European Huntington Association and Asun Martinez, President of the International Huntington Association|
|11:10||Refreshments, exhibition and networking|
|11:40||How do patients perceive the world?: Dr George El-Nimr, Consultant Neuropsychiatrist, Honorary Clinical Lecturer|
|12:05||HD and challenging behaviour: Dr David Craufurd, Senior Lecturer, University of Manchester|
|12:30||Apathy in HD Professor: Josef Priller, Germany|
|12:55||Lunch, exhibition and networking|
|14:00||Parallel Workshops (Download the full agenda below to see workshop options)|
|15:10||Refreshments, exhibition and networking|
|15:40||Optimising the standards of care: Daniela Rae, University of Aberdeen|
|16:05||Research and clinical care in HD; friends or foes?: Professor Hugh Rickards, University of Birmingham|
|16:30||Ask the expert; management of challenging symptoms Panel discussion|
|16:55||Closing remarks and farewell|