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North Staffordshire 6th International Neuropsychiatry Conference

Huntington’s Disease: New Horizons

Tuesday 27th June 2017 at bet365 Stadium, Stoke-on-Trent

Families and care providers continue to face the challenges of providing every day care to the highest possible standard whilst keeping up to date with ever increasing knowledge and research developments. The future looks brighter for generations to come, but today’s patients and carers still have to deal with daily realities.

This event will attempt to give a balanced and realistic account of what is on the horizon for our children without overlooking the struggles of our patients as they continue with their journey. As it has always been emphasised in our previous events, there is no better alternative to patients, clinicians and scientists working together as one team, if we are to deliver best care and achieve disease modification.

A host of eminent speakers have already confirmed their willingness to contribute, these include;

  • Dr David Craufurd
  • Dr George El-Nimr
  • Prof Hugh Rickards
  • Prof Josef Priller
  • Daniela Rae
  • Dina de Sousa
  • Asun Martinez
  • Alice Rivières, French writer and co-founder of Dingdingdong

We are also delighted to offer workshops from:

  • Irwin Mitchell Solicitors
  • The Huntington’s Disease Association
  • The Huntington's Disease Youth Organization
  • Dr Akshay Nair & Lauren Byrne

Aims and Objectives

  • To enhance understanding of challenging clinical presentation of HD
  • To gain more knowledge on recent research developments with regards to symptomatic treatment and disease modification
  • To gain more insight into managing difficult-to-treat symptoms of HD
  • To be enhance awareness of the condition among non-specialists and support family in accessing care
  • To learn about recent legal developments that would be of relevance to patients with HD and their families

Poster Submissions

Poster submissions for presentation at the Conference are invited from delegates who wish to showcase research that they have recently undertaken. There will be a dedicated session for poster viewing at the conference. Deadline for submissions 23:59 Monday 29th May 2017. please download the Submission Form, complete and return to h@cjnsc.kdk-oe.ou using the subject ‘HD Conference 2017 Submission’

Sponsorship Opportunities Available

Following the success of our previous HD Conferences we are pleased to be able to offer interested sponsors a selection of packages. Please contact us if you would be interested in having a presence at the conference. A limited number of sponsors / exhibitors will be considered and applications will be processed subject to availability, please find a sponsorship & Exhibition information document available to download at the bottom of this page.

Booking fees can be found on the registration form, Early Bird rates are available for bookings made before 23:59 Monday 5th June 2017. If you have any queries please contact us via the event hotline on 01332 227779


This event is made possible through the generous support of the following organisations:



Tuesday 27th June 2017

Download the full agenda below to see full details including all workshop options

09:00Registration, exhibition and networking
09:30Introduction: Dr George El-Nimr, Consultant Neuropsychiatrist, North Staffordshire
09:35North Staffordshire Combined Healthcare Trust; Trust Welcome: Andrew Hughes, Joint Director of Strategy and Development
09:40HD for me and my family: Jackie Harrison and Oliver Kooseenlin
10:05Becoming extra-ordinary, A journey through Huntingtonland: Alice Rivières, French writer and co-founder of Dingdingdong
10:30Two bodies, One common goal: Dina de Sousa, Board Member of European Huntington Association and Asun Martinez, President of the International Huntington Association
11:10Refreshments, exhibition and networking
11:40How do our patients perceive the world?: Dr George El-Nimr, Consultant Neuropsychiatrist, Honorary Clinical Lecturer
12:05HD and challenging behaviour: Dr David Craufurd, Senior Lecturer, University of Manchester
12:30Treatment of symptoms: current thinking: Professor Josef Priller, Germany
12:55Lunch, exhibition and networking
14:00Parallel Workshops (Download the full agenda below to see workshop options)
15:10Refreshments, exhibition and networking
15:40Optimising the standards of care: Daniela Rae, University of Aberdeen
16:05Research and clinical care in HD; friends or foes?: Professor Hugh Rickards, University of Birmingham
16:30Ask the expert; challenging symptoms and legal dilemmas: Panel discussion
16:55Closing remarks and farewell


bet365 Stadium

Stanley Matthews Way, Stoke-on-Trent ST4 4EG •  Website•  Directions

Additional Information

Click here to download further information.

PDFSponsorship & Exhibition Pack 2017
PDFFull Conference Agenda