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North Staffordshire 6th International Neuropsychiatry Conference

Huntington’s Disease: New Horizons

Tuesday 27th June 2017 at bet365 Stadium, Stoke-on-Trent

Families and care providers continue to face the challenges of providing every day care to the highest possible standard whilst keeping up to date with ever increasing knowledge and research developments. The future looks brighter for generations to come, but today’s patients and carers still have to deal with daily realities.

This event gave a balanced and realistic account of what is on the horizon for our children without overlooking the struggles of our patients as they continue with their journey. As it has always been emphasised in our previous events, there is no better alternative to patients, clinicians and scientists working together as one team, if we are to deliver best care and achieve disease modification.

A host of eminent speakers included;

  • Dr David Craufurd
  • Dr George El-Nimr
  • Prof Hugh Rickards
  • Prof Josef Priller
  • Daniela Rae
  • Dina de Sousa
  • Asun Martinez
  • Alice Rivières, French writer and co-founder of Dingdingdong

We were also delighted to offer workshops from:

  • Irwin Mitchell Solicitors
  • The Huntington’s Disease Association
  • The Huntington's Disease Youth Organization
  • Dr Akshay Nair & Lauren Byrne

Aims and Objectives

  • To enhance understanding of challenging clinical presentation of HD
  • To gain more knowledge on recent research developments with regards to symptomatic treatment and disease modification
  • To gain more insight into managing difficult-to-treat symptoms of HD
  • To be enhance awareness of the condition among non-specialists and support family in accessing care
  • To learn about recent legal developments that would be of relevance to patients with HD and their families

Presentation Downloads

Working Together

HD for me and my family
Jackie Harrison and Oliver Kooseenline

Becoming extra-ordinary, A journey through Huntingtonland
Alice Rivières, French writer and co-founder of Dingdingdong

Two bodies, One common goal
Dina de Sousa, Board Member of European Huntington Association & Asun Martinez, President of the International Huntington Association

Brain and Mind

How do patients perceive the world?
Dr George El-Nimr, Consultant Neuropsychiatrist, Honorary Clinical Lecturer
Currently unable to share slides

HD and challenging behaviour
Dr David Craufurd, Senior Lecturer, University of Manchester

Treatment of symptoms: current thinking
Professor Josef Priller, Germany
Unable to share slides

Parallel Workshop 1

Young people on board
Catherine Martin, Huntington's Disease Youth Organization
No slides used

End of life issues: A Huntington’s Disease Association perspective
Bill Crowder, Huntington's Disease Association

Parallel Workshop 2

How far have we come? Research update
Dr Akshay Nair and Lauren Byrne

HD and the Law: Legal update
Gemma Eason, Irwin Mitchell Solicitors

Now and the Future

Optimising the standards of care
Daniela Rae, University of Aberdeen

Research and clinical care in HD; friends or foes?
Professor Hugh Rickards, University of Birmingham

Ask the expert; challenging symptoms and legal dilemmas
Panel discussion
No slides used

If you have any queries please contact us via the event hotline on 01332 227779

Sponsors

This event is made possible through the generous support of the following organisations:

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Agenda

Tuesday 27th June 2017

Download the full agenda below to see full details including all workshop options

09:00Registration, exhibition and networking
09:30Introduction: Dr George El-Nimr, Consultant Neuropsychiatrist, North Staffordshire
09:35North Staffordshire Combined Healthcare Trust; Trust Welcome: Andrew Hughes, Joint Director of Strategy and Development
09:40HD for me and my family: Jackie Harrison and Oliver Kooseenlin
10:05Becoming extra-ordinary, A journey through Huntingtonland: Alice Rivières, French writer and co-founder of Dingdingdong
10:30Two bodies, One common goal: Dina de Sousa, Board Member of European Huntington Association and Asun Martinez, President of the International Huntington Association
11:10Refreshments, exhibition and networking
11:40How do our patients perceive the world?: Dr George El-Nimr, Consultant Neuropsychiatrist, Honorary Clinical Lecturer
12:05HD and challenging behaviour: Dr David Craufurd, Senior Lecturer, University of Manchester
12:30Treatment of symptoms: current thinking: Professor Josef Priller, Germany
12:55Lunch, exhibition and networking
14:00Parallel Workshops (Download the full agenda below to see workshop options)
15:10Refreshments, exhibition and networking
15:40Optimising the standards of care: Daniela Rae, University of Aberdeen
16:05Research and clinical care in HD; friends or foes?: Professor Hugh Rickards, University of Birmingham
16:30Ask the expert; challenging symptoms and legal dilemmas: Panel discussion
16:55Closing remarks and farewell

Venue

bet365 Stadium

Stanley Matthews Way, Stoke-on-Trent ST4 4EG •  Website•  Directions

Additional Information

Click here to download further information.

PDFSponsorship & Exhibition Pack 2017
PDFFull Conference Agenda